Delia Bastida Jimenez

Las NEUROFIBROMATOSIS son un grupo de enfermedades raras originadas por una alteración genética que provoca en los afectados un crecimiento descontrolado de tumores en casi todo el organismo. Hoy en día no tiene cura. Desde la Asociación damos todas las pautas necesarias al afectado y familia, que incluyen información, orientación y apoyo. Trabajamos para lograr un fortalecimiento de todos los aspectos psicológicos y sociales y lo hacemos de una manera profesional.

Abril is a 7-year-old girl diagnosed with SPG52, with only 50 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 7 she can hardly move anymore.

UNIDOS CONTRA EL DIPG is a non-profit association made up mostly of families who have lost their children to DIPG, a devastating brain tumor for which there is no cure. 90% of children die one year after diagnosis. It is one of the leading causes of death from illness in childhood. We support research projects for childhood cancer so that one day there will be an effective treatment. Help us make that day come soon. www.unidoscontraeldipg.org