Daniel García Ortiz

Badajoz,  Spagna


Teaming Manager di 1 Gruppi

Dona ogni mese: 1 € a 1 Gruppi

Da 05-09-2017 ha contribuito 146 €

Gruppi che amministra

1

13.847 € Totale raccolto

241 Teamer

Teaming Manager dal:   05/09/2017

FSH Muscular Dystrohy

Help us raise funds that will be donated to research and treatment of the rare degenerative genetic disease called facioscapulohumeral muscular dystrophy (FSHD), which is characterised by marked facial inexpressiveness and progressive muscle weakness. Those affected experience varying degrees of disability, eventually losing the ability to walk and becoming totally dependent on others for much of their lives. ww.fshd-spain.org