Teaming-Manager seit: 05/09/2017
Help us raise funds that will be donated to research and treatment of the rare degenerative genetic disease called facioscapulohumeral muscular dystrophy (FSHD), which is characterised by marked facial inexpressiveness and progressive muscle weakness. Those affected experience varying degrees of disability, eventually losing the ability to walk and becoming totally dependent on others for much of their lives. ww.fshd-spain.org