carmina huesca diaz

Hola a todos !! Soy súper Martín, tengo 19 meses, fui diagnosticado a los 4 con licensefalia (cerebro liso), parálisis cerebral, epilepsia refractaria, laringomalacia y disfagia grave. Trabajo muy duro con varias terapias para conseguir una mejor calidad de vida. Soy el orgullo de todos los que me conocen. Por eso hemos pensado crear un SÚPER EQUIPO. Con vuestra ayuda de 1€ al mes seguro que puedo conseguirlo!

We are a family from Spain. Our son Mateo, has a genetic mutation in the NEK8 gene, considered ultra rare, that is damaging his organs. When he was 9 months old, he had a liver transplant and when he was 3 years old, a kidney transplant. In a future he could need a heart transplant, also. There is a research team that can help him to stop his illness but they need funding (€62,000). Your contribution can save him.

Help Pablito Move Forward Pablito is a brave 3-year-old with cerebral palsy, epilepsy, low vision, and severe neurological challenges. He needs intensive therapies and a pediatric exoskeleton to improve his quality of life.With €1 a month, you can help change his future. Join our Teaming group and be part of this wave of hope for Pablito. Thank you for your support.

Hi I'm Matthew, I was born giving a scare to my moms on Halloween 2021. I have an ultra-rare disease (BCAP31 gene mutation), 2 cases in Spain and few cases in the world. I have severe bilateral hearing loss, low vision, dystonic spastic tetraparesis, central hypomyelination, epilepsy crisis... Mateo is going slowly but moving forward thanks to the therapies he performs. With your small contributivo, you can help him keep moving forward and hopefully one day he can sit, walk, talk