Phelan-McDermid Syndrome is a genetic condition considered a rare disease. Those affected suffer a developmental delay in multiple areas, especially in the ability to speak. Our mission is to improve the quality of life of people affected by the Syndrome through research, support to families and awareness. For more information you can consult our website www.22q13.org.es Visit us on our social networks! @sindromephelan
Todo lo recaudado se destinará a la investigación del Síndrome Phelan-McDermid y a la posterior divulgación de sus frutos para que los afectados, sus familias, médicos, terapeutas y todos aquellos interesados en esta condición genética tengan acceso a información fiable y actualizada.
Publicado em
18/08/2018
More information
See Document
Website:
http://www.22q13.org.es
Este Giving Tuesday únete a nuestro reto!! Invita a tus familiares y amigos a unirse nuestro teaming por 1€ al mes. Este Giving Tuesday regala investigación, comparte en tus redes este reto solidario y ayúdanos a sumar más teamers.
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Publication date
16/08/2018
Type of Group
ONG
Field
Educação
Pesquisa
Pessoas com deficiências
Country
Espanha
Copy paste the URL
https://www.teaming.net/asociacionsindromephelan-mcdermid
