Asociación Síndrome Phelan-McDermid
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What is the story behind this cause?
Phelan-McDermid Syndrome is a genetic condition considered a rare disease. Those affected suffer a developmental delay in multiple areas, especially in the ability to speak. Our mission is to improve the quality of life of people affected by the Syndrome through research, support to families and awareness. For more information you can consult our website www.22q13.org.es Visit us on our social networks! @sindromephelan
What is the aid used for?
Investigación del Síndrome Phelan-McDermid
Asociación Síndrome Phelan-McDermid
Todo lo recaudado se destinará a la investigación del Síndrome Phelan-McDermid y a la posterior divulgación de sus frutos para que los afectados, sus familias, médicos, terapeutas y todos aquellos interesados en esta condición genética tengan acceso a información fiable y actualizada.
Disabilities
Education
ResearchTeaming Managers
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