Asociación Síndrome Phelan-McDermid

Asociación Síndrome Phelan-McDermid

87  Teamers
€4,343 raised

Phelan-McDermid Syndrome is a genetic condition considered a rare disease. Those affected suffer a developmental delay in multiple areas, especially in the ability to speak. Our mission is to improve the quality of life of people affected by the Syndrome through research, support to families and awareness. For more information you can consult our website www.22q13.org.es Visit us on our social networks! @sindromephelan

Project we support

Investigación del Síndrome Phelan-McDermid

Asociación Síndrome Phelan-McDermid

Todo lo recaudado se destinará a la investigación del Síndrome Phelan-McDermid y a la posterior divulgación de sus frutos para que los afectados, sus familias, médicos, terapeutas y todos aquellos interesados en esta condición genética tengan acceso a información fiable y actualizada.


Posted on
18/08/2018

More information
See Document

Website:
http://www.22q13.org.es

Group updates

Carlos Garcia Ruiz
Carlos Garcia Ruiz
Teaming Manager

16/11/2021 16:05 h

Este Giving Tuesday únete a nuestro reto!! Invita a tus familiares y amigos a unirse nuestro teaming por 1€ al mes. Este Giving Tuesday regala investigación, comparte en tus redes este reto solidario y ayúdanos a sumar más teamers.

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Raised

Total raised:
€4,343
We've already donated:
€4,003
Amount raised for the project
€340
See collection history

Information

Publication date
16/08/2018

Type of Group
NGO

Field
Disabilities
Education
Research

Country
Spain

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https://www.teaming.net/asociacionsindromephelan-mcdermid