We are a non-profit association of patients with a rare disease called Complex Regional Pain Syndrome (CRPS) / Sudeck. Our main goals are: to support and assist patients and their families / to raise awareness of the disease / to facilitate early diagnosis and appropriate, interdisciplinary treatment / to promote research into the disease and its treatments / to establish healthcare referral centers in each autonomous community / to create a patients registry.
Our Association was founded to support patients with Complex Regional Pain Syndrome (Sudeck's Syndrome) and their families. This condition is rare and little known, even in the healthcare community, and there is no specific treatment or research. One of our goals is to raise awareness of our condition and promote the scientific knowledge about it by encouraging research. Without knowledge, it´s impossible to improve diagnosis and treatment. "Without science, there is no future."
Publicado em
02/09/2024
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Página web:
https://xn--asociacionespaolasdrc-pbc.org/
El primer lunes de cada noviembre se celebra el día mundial del SDRC, el color naranja es el elegido para visibilizar, concienciar y promover su investigación. Representa la energía, el coraje y la determinación de los pacientes que conviven diariamente con esta patología, así como la esperanza y la incansable búsqueda de tratamientos y soluciones que alivien su dolor.
Mediante el #pasalabolaSDRC pedimos el apoyo de la ciudadanía, porque aunque el dolor físico desproporcionado es la principal característica, el dolor de la incomprensión duele incluso mas.
Apoya a las personas con SDRC - Sudeck, grábate o haz una foto con una pelota naranja, una fruta de naraja o una mandarina... y etiquetanos
@@asociacion_espanola_sudeck
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Data de publicação
06/06/2024
Criado por
Asociación Española de Pacientes con SDRC - Sudecl
Tipo de Grupo
ONG
Âmbito
Cuidados e tratamentos de saúde
Investigação científica
País
Espanha
Copia e cola o URL
https://www.teaming.net/aesdrc
