CPRS - SUDECK SPANISH ASOCIATION NON PROFIT

CPRS - SUDECK SPANISH ASOCIATION NON PROFIT

12  Teamers
€219 raised

We are a non-profit association of patients with a rare disease called Complex Regional Pain Syndrome (CRPS) / Sudeck. Our main goals are: to support and assist patients and their families / to raise awareness of the disease / to facilitate early diagnosis and appropriate, interdisciplinary treatment / to promote research into the disease and its treatments / to establish healthcare referral centers in each autonomous community / to create a patients registry.

Project we support

Support for patients and families with CRPS - Sudeck

Spanish Association of Patients with Complex Regional Pain Syndrome - Sudeck

Our Association was founded to support patients with Complex Regional Pain Syndrome (Sudeck's Syndrome) and their families. This condition is rare and little known, even in the healthcare community, and there is no specific treatment or research. One of our goals is to raise awareness of our condition and promote the scientific knowledge about it by encouraging research. Without knowledge, it´s impossible to improve diagnosis and treatment. "Without science, there is no future."


Posted on
02/09/2024

More information
See Document

Website:
https://xn--asociacionespaolasdrc-pbc.org/

Group updates

AESDRC - Sudeck
AESDRC - Sudeck
Teaming Manager

10/05/2026 20:48 h

Comunidad frente al SDRC' - Programa de psicoterapia grupal y acompañamiento emocional

Ayúdanos a llegar a mas pacientes. Lo que para tí es una pequeña aportación, para nosotros es un gran avance.

El Síndrome de Dolor Regional Complejo (SDRC) es una enfermedad neurológica “invisible” y devastadora que se caracteriza por un dolor desproporcionado que provoca un gran deterioro biopsicosocial.

De carácter multifactorial, los tratamientos aislados suelen fracasar derivando en discapacidad crónica. Un abordaje interdisciplinar es esencial para la recuperación. No obstante, las barreras económicas y físicas suelen limitar el acceso a la psicoterapia especializada.

Como respuesta, la Asociación Española de Pacientes con SDRC ha elaborado el programa online "Comunidad Frente al SDRC", un programa de psicoterapia grupal y acompañamiento emocional para convertir la desesperanza en una red de resiliencia, brindándoles esperanza mediante una red profesional y accesible de apoyo que elimine los obstáculos de desplazamiento.

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Raised

Total raised:
€219
We've already donated:
€72
Amount raised for the project
€147
See collection history

Information

Publication date
06/06/2024

Created by
Asociación Española de Pacientes con SDRC - Sudecl

Type of Group
Non-profit

Field
Patient care
Research

Country
Spain

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https://www.teaming.net/aesdrc