Alex Fernández Solanas
Barcelona, Espanha
Teamer de 1 Grupos
Contribui mensalmente: 1 € para 1 Grupos/projetos sociais
Desde 30-11-2015 contribuiu 119 €
Grupos de que participa
19 112 € Arrecadados
132 Teamers
Teamer desde: 30/11/2015
Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.