Alex Fernández Solanas

Alex Fernández Solanas

Barcelona,  Spanien


Teamer in 1 Gruppen

Spendet jeden Monat: 1 € für 1 Gruppen

Seit 30-11-2015 gespendet: 118 €

Mitglied in folgenden Gruppen

1

18.983 € Gespendet

131 Teamer

Teamer seit:  30/11/2015

Fans of Lluís

Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.