Tere Catalán Sánchez

Tere Catalán Sánchez

Madrid, Spain


Teamer in 2 Groups

Since 08-05-2021 has contributed €66

Groups supported

2

€10,781 Raised

160 Teamers

Teamer since:  08/05/2021

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es


€1,761 Raised

25 Teamers

Teamer since:  08/05/2021

Asociación Alba "Miopatía Nemalínica"

La Asociación Alba “Miopatía Nemalínica” se constituyó con el objeto de dar visibilidad a esta enfermedad rara y canalizar las colaboraciones para sufragar los gastos de terapias y material adaptado / ortopédico para Alba, nuestra hija de ahora 4 años. Nuestro CIF es el G87733580 . Puedes leer algunas notas de prensa donde hemos salido en nuestra web www.albanemalinica.wordpress.com