SUSANA PRADOS JARILLO

Somos la Asociación Niemann Pick de Fuenlabrada.Padres y amigos que luchan para acabar con ésta terrible enfermedad neurodegenerativa, genética y mortal. ¿Imagináis ver a vuestro hijo perder facultades día a día? Nuestra esperanza es la Terapia génica, la CURA de nuestros hijos, tenemos un equipo de investigación y necesitamos de vuestra ayuda, os estaremos eternamente agradecidos. Visítanos en Facebook y conócenos. ¿Nos ayudas? Asociación Niemann Pick Fuenlabrada Viviendo con Niemann pick

Abril is a 7-year-old girl diagnosed with SPG52, with only 50 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 7 she can hardly move anymore.

Open Arms opens its arms to women, men, boys, girls and all those fleeing horror, looking for a chance. The humanitarian emergency in the Mediterranean does not stop and our mission is to protect the lives of the most vulnerable at sea, and on land continues. Working in schools on human rights and empathy and denouncing all injustices is our mission as well. From your hand we can prevent more deaths. We need each other. You are needed.