Stop rare and complex epilepsies: contributing to the cure

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Stop rare and complex epilepsies: contributing to the cure

Stop rare and complex epilepsies: contributing to the cure

14
Teamers
1.480 €
conseguidos

Was ist die Geschichte hinter dieser Initiative?

1 euro per month to promote the cure of rare and complex epilepsies through the scientific research network Indre ApoyoDravet: 14 groups and 20 projects. These diseases describe a world of uncontrolled epileptic seizures, severe cognitive and behavioural impairment, and high degrees of disability and dependence. More than 80,000 people are affected, with a mortality rate of around 25% and costs in excess of €20,000. A research effort coordinated by Dr. Aras

Wofür wird die Hilfe verwendet?

Stop rare and complex epilepsies

ApoyoDravet, rare diseases with epilepsy

The proceeds from the #stopepilepsiasraras project go to fund and support the research of the scientific network Indre ApoyoDravet: 14 groups, 20 projects and more than 50 researchers working to cure rare and complex epilepsies. A research effort of the association and collaborative platform ApoyoDravet, coordinated by Dr. Aras Portilla. More than 80,000 people affected in Spain live with complex epilepsies of which approximately 50% do not know their precise aetiology. With a mortality rate of around 25% in 20 years and costs per affected person of more than 20,000 euros, their cure is a major challenge in the field of neurology and, in particular, in child neurology. Rare and complex epilepsies describe a world of uncontrolled epileptic seizures, severe cognitive and behavioural impairment, and high degrees of disability and dependency. Contribute to the cure. One euro changes worlds, our world.

ONG.Spanien
ApoyoDravet, enfermedades raras con epilepsia
Ayudando desde 26.05.2016
Hilfe für KrankeBehinderungForschung

Teaming Managers

Ana Hornos Uriarte
Ana Hornos Uriarte
Ana Hornos Uriarte
Teaming‑Manager seit 26.05.2016
Du unterstützt 2 Gruppen und verwaltest 1 Gruppen.
Antonio Javier Villalon Calle
Antonio Javier Villalon Calle
Antonio Javier Villalon Calle
Teaming‑Manager seit 19.12.2019
Du unterstützt 1 Gruppen und verwaltest 1 Gruppen.