Sefi Marín Saorín

Sefi Marín Saorín

Murcia, Espanha


Teamer in 1 Groups

Contribui mensalmente: 1€ para 1 grupos/projetos sociais

Desde 31-08-2020 contribuiu 8€

Grupos de que participa

1

3.951€ Total levantado até agora

198 Teamers

Teamer since:  31/08/2020

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es