ROSA PALOMO FERNANDEZ
Baleares (Illes), Espanha
Teamer de 1 Grupos
Desde 26-10-2018 contribuiu 19 €
Grupos de que participa
10 626 € Arrecadados
161 Teamers
Teamer desde: 26/10/2018
We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es