R López

Tarragona,  Espagne


Teamer de 1 Groupes

Chaque mois il/elle apporte 1 € à 1 Groupes

Depuis le 24-07-2023 il/elle a donné 20 €

Groupes auxquels il/elle participe

1

18 983 € récoltés

131 Teamers

Teamer depuis :  24/07/2023

Fans of Lluís

Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.