PAULA FERREIRA
Francia
Teamer de 1 Grupos
Desde el 09-01-2020 ha aportado 19 €
Grupos en los que participa
992 € Recaudados
10 Teamers
Teamer desde: 09/01/2020
I’m Raphael; I’m almost 12 years old and have a rare genetic condition called Smith-Lemli-Opitz syndrome. This syndrome causes various physical malformations, significant hearing loss, and severe motor delays. Thanks to the therapies I am undergoing in France and abroad, I am making incredible progress. The association’s mission is to fund these therapies, which are essential for my development. Your support makes all the difference! €1 FOR YOU, A GIANT LEAP FOR ME!