Tarragona, Spagna
Teamer in 1 Gruppi
Dona ogni mese: 1 € a 1 Gruppi
Da 06-08-2015 ha contribuito 121 €
Teamer da: 07/08/2015
Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.