Manuela Albert Sánchez

Manuela Albert Sánchez

Murcia, Spagna


Teamer in 1 Gruppi

Dona ogni mese: 1€ a 1 Gruppi

Da 29-08-2020 ha contribuito 2€

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2.807€ Totale raccolto

200 Teamer

Teamer da:  29/08/2020

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 25 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es