Manuel Delprieto Delgado Prieto

Alba è una bimba intelligente, divertente, carina. Anche se potremmo dire "era", dal fatidico 21 marzo, quando si è verificato un terribile e tragico incidente. Un parente, in uno stato di shock da un attacco epilettico, lasciò cadere Alba dal terzo piano. Alba è stata salvata ma ha subito diversi danni cerebrali. Ora ha un lungo processo di neuroriabilitazione per cercare di recuperare e tornare ad essere un po' quello che era. Aiutala!

Xènia is a pretty little girl became tetraplegic due the enterovirus outbreak happened in Spain on 2016. She had the most agressive strain, D68 that made several damages in her spinal chord. She's been in the PICU for 3 months having 3 heart attacks and 2 pneumonia, and she recovered succesfully. After that we'd been in Guttmann Institute, a recovery center for 6 months. We're fighting to keep her as healthy as possible Follow us in: https://www.facebook.com/helpxenia/ Thank you so much,

Eva is our little fish. Since he was 4 months old, we are struggling to find the problem he has, of which there is still no clear diagnosis. His brain damage and developmental delay suggest a rare disease. Your collaboration will be used to adapt your life to your environment, expenses that we can not afford alone. Thank you for the support you are giving us and all the positive energy that is coming to you, which undoubtedly makes Eva stronger every day. We keep swimming!

Esmeralda es una niña que tiene una enfermedad rara neurológica que le provoca una polineuropatía desmielinizante  que le afecta al todo el sistema neurológico, constantes crisis epilépticas, problemas de visión, audición, escoliosis, TDAH, problemas de huesos, entre otros. Necesita muchas terapias, y estas son muy caras, las necesita para poder tener un mejor vida. Podéis pasar a conocerla en nuestro instagram de pequeesme

Help us raise funds that will be donated to research and treatment of the rare degenerative genetic disease called facioscapulohumeral muscular dystrophy (FSHD), which is characterised by marked facial inexpressiveness and progressive muscle weakness. Those affected experience varying degrees of disability, eventually losing the ability to walk and becoming totally dependent on others for much of their lives. ww.fshd-spain.org

Darío tiene solo 2 años y una enfermedad ultra-rara y sin cura llamada FOP ( Fibrodisplasia Osificante Progresiva), los músculos, ligamentos, tendones y articulaciones se osifican formando hueso, hasta que crean un segundo esqueleto que les inmoviliza. En España hay unos 40 casos, no tiene cura ni tratamiento e irreversible. Se puede dar por brotes espontáneos o causados por un golpe, vacuna, operación. Necesitamos visibilidad e investigación para un tratamiento ya que hay varios en proyecto.