mamen pujol guerrero
Barcelona, Spain
Teamer in 2 Groups
Contributes every month: €2 to 2 Groups
Since 02-05-2015 has contributed €222
Groups supported
€4,567 Raised
149 Teamers
Teamer since: 03/08/2023
Claudia, con tan solo 4 años y medio, se encuentra afrontando mil batallas, las que le acompañan en esta enfermedad genética y muy rara denominada "MENKE-HENNEKAM", en la que apenas hay diagnosticados unos 50 casos en todo el mundo. Los problemas que le genera son tanto físicos como neurológicos. Así que lanzamos esta campaña para recaudar fondos y así aportarlos a la investigación de su enfermedad. @lasmilbatallasdeclaudia Mil gracias a todos♥️
€7,032 Raised
858 Teamers
Teamer since: 09/01/2024
We are a family from Spain. Our son Mateo, has a genetic mutation in the NEK8 gene, considered ultra rare, that is damaging his organs. When he was 9 months old, he had a liver transplant and when he was 3 years old, a kidney transplant. In a future he could need a heart transplant, also. There is a research team that can help him to stop his illness but they need funding (€62,000). Your contribution can save him.