Lucía Cano Girón
Cádiz, Spain
Teamer in 2 Groups
Contributes every month: €2 to 2 Groups
Since 31-03-2025 has contributed €16
Groups supported
€3,628 Raised
141 Teamers
Teamer since: 31/03/2025
Soy Gabriella y padezco una enfermedad ultrarara neurodegenerativa que solo se da en 1 de cada 1.000.000 de nacidos.Sus síntomas son retraso global del desarrollo,epilepsia, distonía, parkinsonismo, movimientos lentos y degeneración en la edad joven/adulta.No hay cura ni tratamiento, pero sí un estudio de investigación en marcha con un coste bastante elevado.Es por eso que necesitamos de vuestra ayuda para poder obtener ese tratamiento que detenga mi enfermedad.Me ayudas?
€35,379 Raised
1,393 Teamers
Teamer since: 13/01/2026
We are a family from Spain. Our son Mateo, has a genetic mutation in the NEK8 gene, considered ultra rare, that is damaging his organs. When he was 9 months old, he had a liver transplant and when he was 3 years old, a kidney transplant. In a future he could need a heart transplant, also. There is a research team that can help him to stop his illness but they need funding (€62,000). Your contribution can save him.