Lorena Morales Paredes

Lorena Morales Paredes

Córdoba,  Spagna


Teamer in 1 Gruppi

Da 29-11-2018 ha contribuito 34 €

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61 Teamer

Teamer da:  29/11/2018

Asociación Afectados CDKL5

The CDKL5 Association is an NGO for patients with CDKL5 Deficiency Disorder, a genetic disease that causes epileptic encephalopathy and developmental delay with severe motor and cognitive impairment (including absence of speech, inability to walk, respiratory and muscle problems, etc.) It still has no cure, and currently, its treatment focuses on relieving the symptoms, mainly epilepsy. Scientists are investigating advanced therapies to modify the course of the disease. https://aacdkl5.org/