Abril is a 7-year-old girl diagnosed with SPG52, with only 50 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 7 she can hardly move anymore.
This €/month helps us finance the research and therapies that make April in the best physical and cognitive conditions. The total cost of the research is estimated at €450,000 and the manufacturing of the drug is close to €2M. Abril's physical and cognitive therapies represent a significant expense for Abril's family and with this help we can ensure that she is in optimal conditions for a possible cure after investigation.
Pubblicato il
02/03/2020
Pagina Web
http://www.laluchadeabril.net
¡Gracias a tod@s vosotr@s teamers seguimos investigando!
Os dejamos la noticia del laboratorio donde investigan la enfermedad de Abril:
https://www.uab.cat/web/sala-de-prensa/detalle-noticia/nuevo-impulso-economico-al-proyecto-de-la-uab-en-busca-de-una-terapia-genica-para-abril-1345830290069.html?detid=1345854660954
Ya que sois muchos que nos decís que os gustaría poder aportar más de un euro mensual, os dejamos un segundo grupo de Teaming, en el que podréis seguir apoyando nuestra causa:
https://www.teaming.net/laluchadeabril-
¡Gracias de nuevo a tod@s!
2 Commenti
Me acabo de unir!!! Entre todos podemos!!! Abril princesa, te queremos!!!!
1 Commenti
Data di pubblicazione
25/06/2019
Creato da
La Lucha de Abril
Tipo di gruppo
ONG
Settore:
Aiuto ai pazienti
Persone con disabilità
Ricerca
Paese:
Spagna
Regione:
Barcelona
Copia incolla la URL
https://www.teaming.net/laluchadeabril
Teamer
15/02/2024 19:49 h
Yo ya colaboró con 2 niños más y por supuesto con Unoentrecienmil e iremos añadiendo para q estos peques puedan ser niños de verdad ,jugar,correr,estudiar y ser feliz .
Entre todos podemos
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