Somos un grupo de niños/as que tenemos el síndrome de duplicación mecp2, que nos produce retraso mental, psicomotor y de lenguaje, insomnio, infecciones respiratorias, esteriotipias… crisis epilépticas que nos producen regresión. En el hospital Sant Joan de Deu de Bcn se investiga gracias a las familias y a las donaciones privadas para encontrar un tratamiento o cura que mejore nuestra calidad de vida.Necesitamos tu ayuda! www.duplicacionmecp2.es
Mi hijo Toni fue un niño afectado por el síndrome de Alexander. Los médicos no tenían recursos para curarlo, la administración pública no nos ayudó en nada. Sólo nos tendieron su mano, los paliativos de San Juan de Dios y la fundación Nexe. En esta fundación cuidan a los niños pluridiscapacitados en edad temprana, es una guardería, en la que reciben cuidados como fisioterapia, estimulación sensorial, balneoterapia... Queremos ayudar a la fundación para que sigan con su gran labor.
Alba is an inteligent funny and amusing girl. Although we well could say “was”, as a terrible tragic accident happened on fateful march 21st 2016. A relative, who was in a shock due to an epileptic attack, let Alba fall from a third floor. Alba saved her life, but a strong brain damage remains on her. Now, we have a long neurorehabilitation process left ahead to see how much she can recover and become herself again a bit. Help us!
We help more thousands of social causes to make their projects possible every day. Since we launched Teaming, we have raised more than 24 Million of Euros for them, totally free of commissions. We have created this Teaming Group to help Teaming Foundation to keep helping the others with this platform. Among other supports, thanks to the Teamers of this Group, Teaming is totally free. Our dream: to be self-sustaining because of this Group. Would you like to join us?
The emergency continues and the Mediterranean does not stop. Open Arms sails again to continue protecting the lives of the most vulnerable; reaffirming our commitment after one of the most complex and painful missions so far. we can we save them by your side. Help us to continue.
I am Sergio, I was born 4 years ago with a rare disease that only I have in Spain: Hipermelanosis Linear and Spirited Nevoid. I have moderate bilateral hearing and autism. I still do not speak. In two weeks I have a brain tumor that has grown to put my life in danger. I need help for my therapies. For only 1 euro a month, you can change my life. Thank you! Follow me: www.facebook.com/caminandojuntoaSergio
Can you imagine being afraid to hug your child? This is how the parents of Butterfly Children feel. A rare and incurable condition, which causes the skin to break with the slightest touch. DEBRA-BUTTERFLY CHILDREN CHARITY works to improve their quality of life. By joining this group you are giving them wings.
Funded by the renowned pediatric surgeon Dr Raül Abella, was created with the aim of: * Helping, accompanying and supporting children who are born with heart diseases and providing assistance to their families. * Bringing resources to children in need of medical procedures to be operated in Barcelona through international treaties and agreements. * Training medical personnel from other countries who do not have expertise. We treat heart diseases with excellent results.
Asociación sin ánimo de lucro que impulsa el conocimiento y la creación de becas de investigación de Enfermedades Raras e integra a personas con disCapacidad mediante la superación deportiva.