Jose Antonio Alvarez Gonzalez
Navarra, Spanien
Teamer in 1 Gruppen
Mitglied in folgenden Gruppen
25.820 € Gespendet
349 Teamer
Teamer seit: 16/02/2017
The Dravet Syndrome Foundation transforms lives affected by this rare and severe childhood disease described in 1978. Dravet syndrome, a severe myoclonic epilepsy with mutations in the SCN1A gene, causes frequent seizures, developmental delays, orthopedic problems, speech difficulties, autism spectrum disorders, and growth and nutrition issues. We offer emotional support, research, and awareness efforts to bring hope. Join us and be the change!