Javier Santos Martín

Javier Santos Martín

Madrid, Espagne


Teamer de 1 Groupes

Chaque mois il/elle apporte 1 € à 1 Groupes

Depuis le 28-11-2018 il/elle a donné 62 €

Groupes auxquels il/elle participe

1

10 471 € récoltés

162 Teamers

Teamer depuis :  28/11/2018

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es