Girona, Spain
Teamer in 2 Groups
Contributes every month: €2 to 2 Groups
Since 06-01-2024 has contributed €18
Teamer since: 06/01/2024
Hola, me llamo Zak, nací con una enfermedad rara llamada Pallister Killian, solo hay 13 niños en toda España que la padecen. Esta enfermedad afecta a todas las partes del cuerpo, a mi en concreto me afecta en la vista, oído, paladar, boca, dientes, riñones, corazón, pero mi mayor problema es el cerebro y la hipotermia( no tengo masa muscular). Este espacio esta dedicado a recaudar fondos para mis tratamientos médicos. Cada contribución cuenta y me acerca un paso mas a tener un futuro mejor.
Teamer since: 01/02/2025
We are a family from Spain. Our son Mateo, has a genetic mutation in the NEK8 gene, considered ultra rare, that is damaging his organs. When he was 9 months old, he had a liver transplant and when he was 3 years old, a kidney transplant. In a future he could need a heart transplant, also. There is a research team that can help him to stop his illness but they need funding (€62,000). Your contribution can save him.