Héctor Calvo Gonzalez
Tarragona, Spanien
Teamer in 1 Gruppen
Seit 06-08-2015 gespendet: 10 €
Mitglied in folgenden Gruppen
18.983 € Gespendet
131 Teamer
Teamer seit: 06/08/2015
Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.