Eva Maria Martinez Sierra
Toledo, Espanha
Teamer de 1 Grupos
Desde 21-10-2022 contribuiu 18 €
Grupos de que participa
30 198 € Arrecadados
414 Teamers
Teamer desde: 22/10/2022
The Dravet Syndrome Foundation transforms lives affected by this rare and severe childhood disease described in 1978. Dravet syndrome, a severe myoclonic epilepsy with mutations in the SCN1A gene, causes frequent seizures, developmental delays, orthopedic problems, speech difficulties, autism spectrum disorders, and growth and nutrition issues. We offer emotional support, research, and awareness efforts to bring hope. Join us and be the change!