ESTRELLA Romero

Sevilla, Espanya


Teamer de 1 Grups

Cada mes aporta 1€ a 1 Grups

Des del 08-12-2018 ha aportat 17€

Grups on participa

1

3.951€ Recaptats

198 Teamers

Teamer des de:  08/12/2018

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es