Enmanuel Alvarez

Cádiz, Espagne


Teamer de 1 Groupes

Depuis le 16-06-2020 il/elle a donné 19 €

Groupes auxquels il/elle participe

1

10 471 € récoltés

162 Teamers

Teamer depuis :  16/06/2020

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es