Elizabet Rosa roca

Santa Cruz de Tenerife, Spanien


Teamer in 1 Gruppen

Spendet jeden Monat: 1 € für 1 Gruppen

Seit 15-05-2020 gespendet: 44 €

Mitglied in folgenden Gruppen

1

10.783 € Gespendet

160 Teamer

Teamer seit:  15/05/2020

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es