Duly Rodríguez Barcia
Sevilla, Espanha
Teaming Manager de 1 Grupos
Teamer de 1 Grupos
Desde 15-05-2023 contribuiu 36 €
Grupos de que é líder
59 € Arrecadados
2 Teamers
Teaming Manager desde: 18/08/2023
Asociación creada para visibilizar la discapacidad, acompañando a familiares en este camino.
Grupos de que participa
19 637 € Arrecadados
1 564 Teamers
Teamer desde: 18/08/2023
We are a family from Spain. Our son Mateo, has a genetic mutation in the NEK8 gene, considered ultra rare, that is damaging his organs. When he was 9 months old, he had a liver transplant and when he was 3 years old, a kidney transplant. In a future he could need a heart transplant, also. There is a research team that can help him to stop his illness but they need funding (€62,000). Your contribution can save him.