have hereditary ALS with the gene C9orf72. I have been ill for 11 years and already need carers 24 hours a day 7 days a week. My mother died of ALS, my father is 74 and has cancer and we have lost my nephew and my sister is trying to help us both in her situation.
https://www.abc.es/sociedad/ayuda-expres-hector-500-enfermos-ley-ela-20250605042441-nt.html
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Publication date
30/05/2025
Type of Group
Personal
Field
Patient care
Country
Spain
Copy paste the URL
https://www.teaming.net/ayudaahectorconela
