have hereditary ALS with the gene C9orf72. I have been ill for 11 years and already need carers 24 hours a day 7 days a week. My mother died of ALS, my father is 74 and has cancer and we have lost my nephew and my sister is trying to help us both in her situation.
Data de publicació
30/05/2025
Tipus de Grup
Particular
Àmbit
Ajuda a malalts
País
Espanya