Albert Wilshusen
Barcelona, Espanha
Teamer de 1 Grupos
Desde 08-11-2018 contribuiu 49 €
Grupos de que participa
18 983 € Arrecadados
131 Teamers
Teamer desde: 08/11/2018
Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.