Somos una asociación sin ánimos de lucros dedica a dar visibilidad a una enfermedad rara llamada síndrome regional complejo / sudeck. -Promover la investigación de la enfermedad del síndrome de dolor regional complejo(adelante SDRC) y sus tratamientos -Respaldar/ayudar al paciente y su entorno familiar (distintos hábitos : administrativo, psicológico, etc...) -Dar visibilidad de la enfermedad. -Crear unidades de referencias sanitarias por comunidades autónomas. -Ayuda al diagnóstico precoz
Our Association was founded to support patients with Complex Regional Pain Syndrome (Sudeck's Syndrome) and their families. This condition is rare and little known, even in the healthcare community, and there is no specific treatment or research. One of our goals is to raise awareness of our condition and promote the scientific knowledge about it by encouraging research. Without knowledge, it´s impossible to improve diagnosis and treatment. "Without science, there is no future."
Publicado em
02/09/2024
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Página web:
https://xn--asociacionespaolasdrc-pbc.org/
Data de publicação
06/06/2024
Tipo de Grupo
Outros
Âmbito
Cuidados e tratamentos de saúde
Investigação científica
País
Espanha