Somos una asociación sin ánimos de lucros dedica a dar visibilidad a una enfermedad rara llamada síndrome regional complejo / sudeck. -Promover la investigación de la enfermedad del síndrome de dolor regional complejo(adelante SDRC) y sus tratamientos -Respaldar/ayudar al paciente y su entorno familiar (distintos hábitos : administrativo, psicológico, etc...) -Dar visibilidad de la enfermedad. -Crear unidades de referencias sanitarias por comunidades autónomas. -Ayuda al diagnóstico precoz
Our Association was founded to support patients with Complex Regional Pain Syndrome (Sudeck's Syndrome) and their families. This condition is rare and little known, even in the healthcare community, and there is no specific treatment or research. One of our goals is to raise awareness of our condition and promote the scientific knowledge about it by encouraging research. Without knowledge, it´s impossible to improve diagnosis and treatment. "Without science, there is no future."
Posted on
02/09/2024
More information
See Document
Publication date
06/06/2024
Type of Group
Other
Field
Patient care
Research
Country
Spain