Yoly de Valencia

Valencia,  Spagna


Teamer in 1 Gruppi

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Da 17-09-2025 ha contribuito 7 €

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2.415 € Totale raccolto

56 Teamer

Teamer da:  17/09/2025

SCN8A Spain

Non-profit association with 28 families in Spain with children with a very rare genetic mutation, SCN8A. Our children can suffer from very severe encephalopathy, with epileptic seizures that are very difficult to control and other symptoms, such as motor and/or intellectual disability, autistic traits... We need funds and with the help of Teamers and other initiatives we want to finance research projects and the dissemination of the disease among families, doctors and researchers.