Saray Arranz perez
Córdoba, Espanha
Teamer de 1 Grupos
Desde 14-12-2020 contribuiu 19 €
Grupos de que participa
2 626 € Arrecadados
40 Teamers
Teamer desde: 14/12/2020
Martina is a Córdoba baby who suffers from a rare disease called SMARD1 known as Spinal Muscular Atrophy with Respiratory Difficulty, this disease affects one hundred children worldwide, being Martina the only one affected in all of Spain. Martina with only 3 years requires mechanical ventilation 24 hours a day to breathe, can not walk, or sit and feeds through a tube. THE PROCEEDS ARE FOR RESEARCH, a gene therapy tested on animals with promising result