Penelope Ausejo

Penelope Ausejo

Navarra, Espanya


Teamer de 1 Grups

Des del 16-04-2019 ha aportat 26 €

Grups on participa

1

6.041 € Recaptats

85 Teamers

Teamer des de:  17/04/2019

Asociación Síndrome Phelan-McDermid

Phelan-McDermid Syndrome is a genetic condition considered a rare disease. Those affected suffer a developmental delay in multiple areas, especially in the ability to speak. Our mission is to improve the quality of life of people affected by the Syndrome through research, support to families and awareness. For more information you can consult our website www.22q13.org.es Visit us on our social networks! @sindromephelan