NURIA PATERNA LLUCH

NURIA PATERNA LLUCH

Castellón, Espanha


Teamer de 1 Grupos

Grupos de que participa

1

10 995 € Arrecadados

74 Teamers

Teamer desde:  23/03/2018

ALUDME, fight against Myoclonus dystonia (M-D)

Jesus is almost 5 years and is diagnosed with Myoclonus dystonia, a rare disease that prevents you from running, jumping, eating alone, making precise movements... Doctors can't say what the future of the children like Jesus will be. Some patients end up undergoing a dangerous operation that also doesn't guarantee that it will be effective in this disease. We don't want to see our child in a wheelchair and to think we could avoid it. Would you join us?