Maria Neus Jou Marí

Maria Neus Jou Marí

Girona, Espagne


Teamer de 1 Groupes

Chaque mois il/elle apporte 1 € à 1 Groupes

Depuis le 12-04-2019 il/elle a donné 60 €

Groupes auxquels il/elle participe

1

3 401 € récoltés

48 Teamers

Teamer depuis :  12/04/2019

Fundación AHUCE Osteogénesis Imperfecta

AHUCE Foundation (www.fundacionahuce.org) works to improve the quality of life of people with Osteogenesis Imperfecta (OI) through research. OI is a congenital pathology characterized by an inadequate formation of bone tissue. People's bones are very fragile. There are other manifestations, such as short stature, hyperlaxity, respiratory problems, cardiovascular problems, weak musculature, hearing loss, vision problems, scoliosis and chronic pain.