Marga Tapia Rodriguez

Sevilla,  Espanya


Teamer de 1 Grups

Cada mes aporta 1 € a 1 Grups

Des del 18-03-2024 ha aportat 25 €

Grups on participa

1

2.415 € Recaptats

56 Teamers

Teamer des de:  18/03/2024

SCN8A Spain

Non-profit association with 28 families in Spain with children with a very rare genetic mutation, SCN8A. Our children can suffer from very severe encephalopathy, with epileptic seizures that are very difficult to control and other symptoms, such as motor and/or intellectual disability, autistic traits... We need funds and with the help of Teamers and other initiatives we want to finance research projects and the dissemination of the disease among families, doctors and researchers.