Josefa Madrid terber
Madrid, Spain
Teamer in 2 Groups
Since 03-04-2013 has contributed €98
Groups supported
€27,084 Raised
121 Teamers
Teamer since: 04/04/2013
Daniela tiene 7 años y desde los 2 meses de vida está diagnosticada de Síndrome de Alagille. Es de esas enfermedades que consideran raras y el 7 de marzo de 2016 se le realizo un trasplante de hígado porque es el único tratamiento para esta enfermedad que NO TIENE CURA.Todo el dinero que se recaude será para costear los tratamientos que no cubre la Sanidad Pública y ayudar a su familia,que lucha con todas sus fuerzas para que pueda tener la mejor calidad de vida. Gracias por vuestra solidaridad.
€696 Raised
10 Teamers
Teamer since: 21/11/2017
HePA is a private non-profit organization that was formed by a group of family members and friends of children with liver disease and / or liver transplants and whose main mission is to group these children to accompany them in this process, represent and defend their rights and needs and promote actions and resources that contribute to the improvement of their quality of life and that of their families. For more information, visit our website: www.asociacionhepa.org and help us help ”