Teaming Manager desde: 18/07/2016
Somos una asociación sin ánimo de lucro, formada por padres y amigos de niños con distrofia muscular de Duchenne o Becker. Nuestra misión es recaudar fondos para la investigación, tratamiento y manejo de ambas enfermedades. Toda la recaudación irá destinada a proyectos de la Unidad de Patologías Neuromusculares del Hospital Sant Joan de Déu de Barcelona.
Teamer desde: 26/06/2013
Fathers and mothers from all over Spain, aware of the seriousness of our children, we decided to fight to give them a better and hopeful future. That is why we have joined together in order to raise funds through the Duchenne Parent Project for research. Currently we have launched 22 research projects in our country aimed at finding a cure or improvement for this disease. Help us to follow, JOIN OUR CHALLENGE! desafioduchenne.org