Jesus Hispan Molina

Córdoba, Spagna


Teamer in 1 Gruppi

Da 08-03-2021 ha contribuito 23 €

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40 Teamer

Teamer da:  08/03/2021

Lucha con Martina

Martina is a Córdoba baby who suffers from a rare disease called SMARD1 known as Spinal Muscular Atrophy with Respiratory Difficulty, this disease affects one hundred children worldwide, being Martina the only one affected in all of Spain. Martina with only 3 years requires mechanical ventilation 24 hours a day to breathe, can not walk, or sit and feeds through a tube. THE PROCEEDS ARE FOR RESEARCH, a gene therapy tested on animals with promising result