Javier Garcia del Rio

Madrid, Espanha


Teamer de 1 Grupos

Desde 22-09-2019 contribuiu 33 €

Grupos de que participa

1

3 449 € Arrecadados

48 Teamers

Teamer desde:  22/09/2019

Fundación AHUCE Osteogénesis Imperfecta

AHUCE Foundation (www.fundacionahuce.org) works to improve the quality of life of people with Osteogenesis Imperfecta (OI) through research. OI is a congenital pathology characterized by an inadequate formation of bone tissue. People's bones are very fragile. There are other manifestations, such as short stature, hyperlaxity, respiratory problems, cardiovascular problems, weak musculature, hearing loss, vision problems, scoliosis and chronic pain.