Cádiz, Espanha
Teamer de 2 Grupos
Desde 01-10-2018 contribuiu 52 €
Teamer desde: 01/10/2018
Eric has a rare genetic disease called CDKL5 which has no cure, he suffers from untreatable epilepsy since he was 20 days old, unfortunatelly he not able to walk, hold his head or manipulate. We also feed him through a gtube in his stomach. Giving Eric good quality of life Is very expensive and that Is why we ask for help.
Teamer desde: 06/03/2021
Hola mi nombre es Noa tengo 7 añitos y tengo PCI, causado por citomegalovirus mientras crecia en la barriga de mi mama. Tengo retraso psicomotor, hipoacusia severa en oido derecho, problemas de vision. Mi mama ha tenido la genial idea de crear este grupo para que podais colaborar y hacer frente a las terapias que diariamente necesito. Nos ayudas???